MONTREAL, April 17,
2024 /PRNewswire/ - On April
17, 2024, the global bleeding disorders community will come
together to celebrate World Hemophilia Day. The theme of the event
this year is "Equitable access for all: recognizing all bleeding
disorders". The World Federation of Hemophilia (WFH) vision of
Treatment for All is for a world where all people with inherited
bleeding disorders have access to care, regardless of their type of
bleeding disorder, gender, age, or where they live. This April,
let's celebrate our community and continue working towards a world
where everyone—with hemophilia A or B, von Willebrand disease (VWD)
or any other bleeding disorder—has access to diagnosis, treatment,
and comprehensive care.
"At one time, when one said, 'bleeding
disorder', people heard 'male with hemophilia'. In the last few
years, the world has started seeing that a bleeding disorder means
much more. It's hemophilia A and B, von Willebrand disease (VWD),
and other conditions. It's men, boys, women and girls. It's the
parents and the friends who support the person with a bleeding
disorder. In short, 'bleeding disorder' means community—a community
that deserves recognition, and one that needs our support. Please
join us on April 17 to show the world
that you care about equitable access for all."
—Cesar Garrido, WFH President
There are many ways you can bring attention to hemophilia and
other inherited bleeding disorders in your local and global
community to raise awareness of the need for inclusion in national
policy. Whether you are a person with a bleeding disorder, a
national member organization (NMO), or a healthcare professional,
here are just a few things you can do to get started:
- Contact your NMO to find out how you and other NMO
members can work together on World Hemophilia Day
- Participate in the World Hemophilia Day Light it Up Red!
campaign. Last year, thousands of people worldwide showed their
support by lighting up over 150 landmarks red in cities across the
world
- Advocate locally using WFH World Hemophilia Day
materials—including our letter template—and educate elected
officials and health ministers
- Support our global advocacy efforts and be a part of
what we are building today for future generations by donating
here
- Share your story about how your quality of life—or
the quality of life of someone you know—has changed thanks to
receiving home-based treatment or prophylactic treatment on
wfh.org/whd
- Get social by posting about inherited bleeding disorders
on Facebook, Twitter and LinkedIn using the #WorldHemophiliaDay,
#WHD2024, and #LightItUpRed hashtags
- Download resources like posters and social media
banners from wfh.org/whd to help build your World Hemophilia
Day Campaign
- Organize a community event, webinar, forum, or town hall
and invite elected officials to learn more about your work
first-hand and to meet with the community
- Take action locally and use WFH World Hemophilia Day
materials to send a letter to your local policymakers, set up
meetings with elected officials and health ministers and engage
with the local media
- Send pictures, comments, or questions to the WFH at
communications@wfh.org
To learn more about World Hemophilia Day, please visit
wfh.org/world-hemophilia-day.
The WFH would like to thank our 2024 World Hemophilia Day
sponsors for their continued support: Bayer, BioMarin
Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche
Ltd., GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk,
Octapharma, Pfizer, Sanofi, Sobi, Spark Therapeutics, and
Takeda.
About bleeding disorders
In people with bleeding disorders such as hemophilia A or B, or
von Willebrand disease (VWD), the blood clotting process doesn't
work properly, with the result that they can bleed for longer than
normal, and some people may experience spontaneous bleeding into
joints, muscles, or other parts of their bodies which can lead to
developmental and permanent mobility issues.
About the World Federation of
Hemophilia
The World Federation of Hemophilia (WFH) is a non-profit
organization dedicated to improving and sustaining care for people
with inherited bleeding disorders around the world. We work in
partnership with healthcare providers (HCPs), governments, and our
global network of national member organizations (NMOs) in 147
countries. We provide our NMOs and healthcare providers with the
knowledge and tools they need to identify, support and treat people
living with bleeding disorders in their communities, while
promoting global advocacy and collaboration to achieve our common
goals.
Our vision of Treatment for All is for a world where all people
with inherited bleeding disorders have access to care, regardless
of their type of bleeding disorder, gender, age, or where they
live. Our mission is to improve and sustain care for people with
inherited bleeding disorders around the world.
To find out more about the WFH, please visit
www.wfh.org.
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SOURCE World Federation of Hemophilia